Mon, Feb 20, 2017 | updated 11:41 AM IST

Hemophilia Federation India brings its reason, consequences to light

Updated: Nov 25, 2016 12:18 IST
New Delhi [India], Nov. 25 (ANI): Hemophilia Federation India (HFI) organised an event to commemorate its Founder's Day on November 24 to spread awareness about the disease and its consequences and also measures that have been taken into consideration to extend a helping hand to the patients suffering from this dreadful disease.

This year, on its founder's day, HFI focused on to lay a proposal to the Central Government for proper budgeting and provisions to initiate Anti - Hemophilia Factor (HFI) under NACO. The federation has also forwarded the desired proposal to National Health Mission of India to help people cure this communicable disease across the country by setting up centres in different cities.

Kamlesh Kumar Pandey, Chief Commissioner for Person Disability addressed, "Hemophilia is such a disease that can be managed but cannot be removed from inside. It creates hindrance for the patients to live their lives on their own terms. Hemophilia is such a disease that slowly takes a person towards disability and the ministry is trying to get the bill approved in order set up treatment centres across India in different districts to treat the cause."

"As per the disability Act, there are 7 diseases categorized under it but soon there be 18 such categories including Hemophilia, cancer and other such related diseases. Administration is taking steps to get this disability recognised in order to the patients on medical terms. The bill has been forwarded to the PMO and will be soon approved by the Rajya Sabha to declare it as a disability in the Disability Act in India," he added, at Indian Habitat Centre here.

Dr G.N. Singh, Drug Controller General of India (DCGI) threw light saying, "Health Ministry of India is considering this disease a disability and appreciates the vision of HFI society. We under the plight, consequences and after effects or genetic disorders a patient has to undergo while fighting the battle with Hemophilia. I feel so grateful to Late Ashok Verma for lying down this foundation ages ago when the disease was not that known. He started this movement when there were no funds and optimum resources available to facilitate the actions."

"People often complained about the expired and tampered medicines or cosmetics from overseas that have adversely affected their health but with time India has shown great improvement in the field of science and medicine. It proved to be catalyst in getting affiliations from UN -WHO. We are proposing for public sector health care units with proper arrangements and better quality medicine chains. To allocate funds, helping the victims cure out in better means all across India. We will make sure that all the grievances of the patients are being taken into account and Anti Hemophilia Factor facilities are provided," Singh continued.

According to Deputy Commissioner National Urban Health Mission Basab Gupta, "We have laid a proposal to FMR to support the fight against Hemophilia and allocation of funds for such specific purposes. We are looking forward to formulate standard protocol and set proper guidelines at National level disseminating the motive of the cause in states and ask for immediate funds for the same."

This year, the immediate focus was on the custom clearances of donated Anti Hemophilia Factor (AHF) aid from World Federation of Hemophilia (WFH) which always gets held up due to excessive bureaucratic hurdles. HFI requested for Hemophilia budget allocation in NHM, Hemophilia Treatment Center in every state with testing facility in every district and a standard purchase protocol for AHF procurement of international standard.

Prominent doctors, hematologists, physiotherapists and hemophilia caregivers from various medical colleges & hospitals of the country participated in the workshops, who were felicitated for their noble contribution in the respective field. They interacted with the audience comprising mainly of Hemophilia patients about their grievances and myths about the disease.

On a related note, Hemophilia is a genetic and life-threatening bleeding disorder. Even with a minor injury or cut, in hemophilia patients' blood does not clot normally due to the absence of clotting proteins called Factors. If not taken care, recurrent and prolonged bleeding into joints and muscles can lead to permanent disability and bleeding from the sensitive organs can lead even to death.

The only possible treatment is infusion of life saving drugs called Anti-Hemophilic Factors (AHF), which is costly and neither produced nor readily available in India. (1 unit of Factor costs around Rs. 10-12 and at any bleeding episode a person needs 500 to 2,000 IUs in one shot which amounts to an expenditure of Rs. 5,000 to Rs. 20,000 on an average). (ANI)

New Delhi [India], Feb 20. (ANI): Good news for all those lazy-headed not-really-a-cleanliness-freak out there! Scientists have found out that the obsession with hygiene could even be turning some beneficial bacteria found in the human gut into "endangered species".

Full Story >>

New Delhi [India], Feb 20. (ANI): In order to persuade someone to quit smoking, it is the 'emotions' that need to be triggered rather than inciting fear in an individual.

Full Story >>

No difference between good or bad diet: Study

Updated: Feb 20, 2017 05:54 IST

New Delhi [India], Feb 20. (ANI): Ever faced a choice between Brown and white bread?

Full Story >>

Washington D.C. [USA], Feb. 19 (ANI): To boost sustainability of livestock production, a study finds that gene editing - one of the newest and most promising tools of biotechnology - enables animal breeders to make beneficial genetic changes, without bringing along unwanted genetic changes.

Full Story >>

People with ADHD may have smaller brain volume

Updated: Feb 19, 2017 07:09 IST

New Delhi [India], Feb 19. (ANI): In a latest study it has been found out that people diagnosed with attention deficit hyperactivity disorder (ADHD) have smaller brain volume than those without the disorder.

Full Story >>

New Delhi [India], Feb 19. (ANI): What if we tell you that scientists can actually slow down the process of ageing. Sounds too good to be true right?

Full Story >>

New Delhi [India], Feb 19. (ANI): Lefty or righty? Well it was decided when you were still in your mum's womb!

Full Story >>

Dads-to be face greater risk of depression

Updated: Feb 19, 2017 06:53 IST

New Delhi [India], Feb 19. (ANI): Expecting a baby is always a joyous experience for both the mother and the father, however a latest study has found out that fathers-to-be can be at risk of depression symptoms if they feel stressed or are in poor health.

Full Story >>

New Delhi [India], Feb 19. (ANI): Do you find it difficult hearing out people at a noisy bar or a restaurant even though you have passed the hearing test with flying colors? Well, you might be secretly deaf!

Full Story >>

New Delhi [India], Feb 19. (ANI): What if we told you that rice has the potential of carrying arsenic and is more than hazardous to feed it to infants!

Full Story >>

Washington D.C. [USA], Feb. 18 (ANI): Now you can save your kid from surgery, as a study shows that antibiotics may be an effective treatment for acute non-complicated appendicitis in children, instead of surgery.

Full Story >>

Washington D.C. [USA], Feb. 18 (ANI): Attention new mommies, sing lullabies to your new born to feel more connected to your babies, suggests a study.

Full Story >>

Washington D.C. [USA], Feb. 18 (ANI): Cancer patients can improve their quality of life with just 30 minutes of walking, suggests a study.

Full Story >>

New Delhi [India], Feb. 17 (ANI): Birth of a baby may be a sweet moment but changing life style of women is posing 'sweet' challenge to it.

Full Story >>

New Delhi [India], Feb. 17 (ANI): Good news! A recent study shows that antibiotics may be an effective treatment for acute non-complicated appendicitis in children, instead of surgery.

Full Story >>

'Seagrass' can improve marine water quality

Updated: Feb 17, 2017 07:07 IST

Washington D.C. [USA], Feb. 17 (ANI): Underwater flowering plants and seagrass meadows known to produce natural antibiotics, can also improve the water quality of sea by suppressing pollution, reveals a study.

Full Story >>

Washington D.C. [USA], Feb. 17 (ANI): Before undergoing hip replacements, knee replacements or hernia repairs, do not let depression or anxiety take a toll on your health, as a study finds, a patients' mental health may affect their risk of experiencing wound-related complications after surgery.

Full Story >>

Washington D.C. [USA], Feb. 17 (ANI): Configure the airflow velocity of your Air Conditioner to a comfortable sleeping environment, as a study reveals when airflow is directed at a human body at an insensible velocity, it may increase your heart rate and affect sleeping positions.

Full Story >>

London [UK], Feb. 17 (ANI): Consume a healthy dose of vitamin D supplements during winters, as a study finds that taking them may protect you from acute respiratory infections and flu.

Full Story >>

Washington D.C. [USA], Feb. 17 (ANI): As a saying, "beauty is skin deep" sounds fair, but in the real world where money is top priority, physical attractiveness might have a lot more prominence than just inner beauty.

Full Story >>