Search For "rare disease"
Updated : 3 weeks, 2 days ago IST
Patna (Bihar) [India], September 2 (ANI): Bharatiya Janata Party (BJP) Bihar state president Sanjay Jaiswal has been admitted to Patna AIIMS after being diagnosed with a rare disease Stevens-Johnson syndrome.
Updated : 1 month, 1 week ago IST
New Delhi [India], August 18 (ANI): The government of India has started a unique initiative i.e a crowdfunding programme for the treatment of rare diseases with the help of a portal. Under this programme, corporates and individuals can donate online for the treatment of patients suffering fr
Updated : 2 months ago IST
Kochi (Kerala) [India], July 22 (ANI): The Kerala High Court on Thursday directed the state government to inform about Rs 16.5 crore collected through crowdfunding for the treatment of a child who died of Spinal Muscular Atrophy (SMA) recently.
Updated : 2 months, 2 weeks ago IST
Thiruvananthapuram (Kerala) [India], July 9 (ANI): Kerala Chief Minister Pinarayi Vijayan on Thursday wrote to Prime Minister Narendra Modi requesting him to ask the finance ministry not to levy Customs duty and the Integrated Goods and Services Tax for the import of a Rs 18 crore life-sa
Updated : 3 months, 2 weeks ago IST
Hyderabad (Telangana) [India], June 13 (ANI): Three-year-old Ayaansh Gupta from Hyderabad, suffering from a rare disease Spinal Muscular Atrophy (SMA), has been administered with the world's most expensive medicine ZOLGENSMA, after his parents mobilised Rs 16 crore through crowd-funding.
Updated : 4 months ago IST
Lucknow (Uttar Pradesh) [India], May 25 (ANI): A 38-week pregnant woman suffering from a rare disease Idiopathic Thrombocytopenic Purpura and from COVID-19 also, was successfully treated at Queen Mary's Hospital in King George's Medical University (KGMU), Lucknow and gave birth to a baby gir
Updated : 5 months, 1 week ago IST
Cincinnati (Ohio) [US], April 16 (ANI): University of Cincinnati researchers have found a newer, more effective treatment for the disease Pompe that could become the new standard of care for the rare condition.
Updated : 5 months, 3 weeks ago IST
New Delhi [India], April 4 (ANI): Union Health and Family Welfare Minister Harsh Vardhan approved the "National Policy for Rare Diseases 2021", which aims to lower the high cost of treatment for rare diseases with an increased focus on indigenous research, the health ministry said on Saturda
Updated : 6 months ago IST
New Delhi [India], March 23 (ANI): The Delhi High Court on Tuesday passed several directions for treatment of people suffering from rare diseases including setting up a National Consortium for Rare Disease (NCRD). The Court also directed the Central government to finalise and notify the Nati
Updated : 6 months, 1 week ago IST
Stockholm [Sweden], March 21 (ANI): A clinical study drove by journal Genome Medicine, constituted a major leap forward in the emerging field of precision medicine by highlighting the impact of how whole genome sequencing made possible to diagnose rare disease.
Solna [Sweden], March 17 (ANI): More than 1,200 people with rare diseases have received a diagnosis thanks to the integration of large-scale genomics into the Stockholm region's healthcare system. This is according to a study from Karolinska Institutet in Sweden that analysed the result of t
Updated : 6 months, 3 weeks ago IST
New Delhi [India], March 5 (ANI/NewsVoir): To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People to People Health Foundation (PPHF), a public health organization working towards better healthcare and Niti Aayog, Co-hosted a Globa