Search For "rare disease"
Updated : 2 years, 11 months ago IST
New Delhi [India] October 15 (ANI): A Public Interest Litigation (PIL) has been filed in the Supreme Court against the Centre and state governments for "failing to constitute a state-level technical-cum-administrative committee, and to identify designated hospitals for treatment of people s
Updated : 3 years, 3 months ago IST
New Delhi [India], May 26 (ANI): The Ministry of Health & Family Welfare (MoH&FW), in 2017, took a landmark step by approving the National Policy for Treatment of Rare Diseases.
Updated : 3 years, 5 months ago IST
New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the state governments to implement individual state rare disease policies as pe
Updated : 3 years, 6 months ago IST
New Delhi [India], Mar 20 (ANI): National Award winning actor Irrfan Khan, who is suffering from a rare disease, has posted a touching message on social media.
Washington D.C. [U.S.A.], Mar. 20 (ANI): Scientists have discovered new causes of cellular decline in prematurely aging kids with rare and fatal diseases.
New Delhi [India], Mar. 16 (ANI): In what could bring respite to Irrfan Khan's fans, who are in a state of shock after the actor revealed that he is diagnosed with NeuroEndocrine Tumour, a doctor said that former's 'rare disease' is curable.
New Delhi [India], Mar. 16 (ANI): As the news of Bollywood actor Irrfan Khan being diagnosed with NeuroEndocrine Tumour (NETs) broke the internet, people have gotten curious about this rare disease.
New Delhi [India], Mar. 16 (ANI): Finally breaking his silence, Irrfan Khan revealed that he is diagnosed with NeuroEndocrine Tumour.
New Delhi [India], Mar 08 (ANI): Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian government has now put a National Rare Disease Policy in place and Rs 100 crore funds have been allocated towards genetic d
New Delhi [India], Mar. 06 (ANI): Ever since Irrfan Khan revealed contraction of a 'rare disease' on Monday, his fans have been flooding his Twitter with well-wishing messages.
Updated : 3 years, 7 months ago IST
New Delhi [India], Feb 9 (ANI): As an important step towards expediting the process of providing treatment to rare disease patients, the Delhi state government, in the High Court, has proposed the setting up of a Technical cum Administrative Committee for rare diseases.
Updated : 3 years, 9 months ago IST
Washington D.C. [USA], Dec 20 (ANI): People living with rare diseases are at greater risk of experiencing poor quality of life such as increased levels of anxiety, depression, pain, fatigue.